EoE Module 13 References-Masclee et al BMC Gastroenterol 2021 Patient preferences in healthcare delivery in IBD A focus group study

Masclee et al BMC Gastroenterol 2021 Patient preferences in healthcare delivery in IBD A focus group study

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The study "Patient preferences of healthcare delivery in irritable bowel syndrome: a focus group study," by Masclee et al., aims to understand patient needs and preferences regarding IBS treatment in the Netherlands through focus group discussions. Conducted with 23 IBS patients and one parent, the study identifies key patient preferences, including clear communication, a multidisciplinary treatment team, expert healthcare centers, robust scientific research, and readily available information on IBS.<br /><br />IBS is described as a prevalent disorder with significant impacts on patients' quality of life, leading to high healthcare usage and costs. The study underlines the importance of a strong therapeutic relationship and individualized patient advice, noting that patients often have to develop self-management coping skills due to the chronic and incurable nature of IBS.<br /><br />Patients highlighted a need for clear and open communication from healthcare providers, emphasizing that acknowledgment of their symptoms and impact on life is crucial for successful management. They also stressed the need for a team approach to treatment, involving specialists like gastroenterologists, dieticians, nurses, and psychologists. Participants were particularly interested in diet adjustments and noted variances in support and effectiveness received from dieticians in the past.<br /><br />The concept of expert centers for IBS was well-received, with expectations of high-standard, comprehensive, and coordinated care. Participants expressed a strong interest in scientific research to improve understanding and treatment of IBS.<br /><br />Information accessibility was a major concern, with a call for a centralized source of up-to-date and scientifically validated information about IBS. This study suggests that improving these areas could enhance patient care and outcomes, reduce healthcare costs, and better meet the needs of IBS patients.

Keywords

IBS

patient preferences

healthcare delivery

focus group

Netherlands

multidisciplinary treatment

expert centers

self-management

clear communication

scientific research