EoE Patient Resources-Case Discussion: The Patient Experience

Video Transcription

Video Summary

The session discussed Eosinophilic Esophagitis (EOE) through the patient journey of Danis, who was diagnosed at 24 after experiencing symptoms from the age of 15. Initially, Danis didn't perceive choking and swallowing difficulties as serious and was misunderstood by those around her. Diagnosis came unexpectedly during a visit to a gastroenterologist for an unrelated issue. After her diagnosis, she learned EOE was a chronic condition but struggled with the initial fear due to a lack of thorough explanation about its implications. Her journey included attempts at elimination diets, which were ultimately unhelpful, and effective treatments like medication and dilations. For Danis, managing EOE required regular monitoring and understanding its interplay with stress and other allergies. Although she faced barriers like the high cost of medications and fear about the disease's progression, her quality of life improved significantly once her condition was managed. Being more open about her condition helped, indicating that increased public awareness and understanding could facilitate better support for EOE patients. Overall, Danis' story highlighted the importance of patient-clinician relationships in managing chronic conditions, emphasizing understanding and communication.

Asset Subtitle

with Dr. Nirmala Gonsalves . 2024

Keywords

Eosinophilic Esophagitis

patient journey

chronic condition

treatment

public awareness

patient-clinician relationship

quality of life